Update on L

We got updated pics and measurements for baby L. He has grown up so much since the last pics we saw of him! We asked for updates on both the boys to try to estimate clothing and shoe sizes. He weighs 10kg (20lb) is 29 inches tall and his little foot is 5 inches long!






- Amanda & Roland

EB

Our new son Joseph Chuan has a rare genetic skin disease called Epdermilysis Bullosae. EB for short. This week is EB awareness week. Parents friends and caregivers are trying to increase awareness about this disease. If you google EB the pictures may make you want to heave. I cannot imagine how difficult it would be to care for a child with the more severe forms of EB. There are also some recent advances and a current trial of bone marrow transplant going on now. Several children have lived through the BMT(which is a major feat alone) and some have not survived the BMT. I am writing about this to increase awareness and hopefully one day there will be a cure for all forms of EB. For now and especially this week, please keep these children and their families in your prayers.


- Amanda & Roland